Pandemic Patients Submits Feedback on the Household Pulse Survey
May 30, 2023
On May 30, 2023, Pandemic Patients submitted feedback to the U.S. Census Bureau on the agency’s proposed updates to the Household Pulse Survey.
Tag: Long COVID
NASEM Convenes Stakeholders to Refine Definition of Long COVID
May 9, 2023
A committee from the National Academies of Sciences, Engineering, and Medicine is soliciting feedback from the public on the U.S. Government’s working definition of Long COVID. Comments can be submitted through June 12, 2023.
CHeST Endorses the CARE for Long COVID Act
March 16, 2023
CHeST is proud to stand in solidarity with the long COVID patient community by endorsing the CARE for Long COVID Act.
Pandemic Patients is Going to Washington
March 15, 2023
We are hosting a briefing about long COVID on Capitol Hill and we need your support!
March 15 is International Long COVID Awareness Day
March 13, 2023
On March 15, we will be observing International Long COVID Awareness Day, which serves to recognize the countless Americans who have been affected by long COVID.
Join Us: “The ‘End’ of the Public Health Emergency” on April 20
March 5, 2023
The Biden Administration recently announced that the public health emergency will end on May 11, 2023. As many of the flexibilities to improve access to tests and treatments expire, learn what’s next and what it means for you.
FDA Schedules Public Meeting on Long COVID
February 26, 2023
To better understand and address the impacts of long COVID, the U.S. Food and Drug Administration (FDA) is hosting a public meeting on April 25, 2023 to hear directly from patients and patient representatives.
CHeST Endorses the Stop the Wait Act
February 11, 2023
CHeST is proud to announce its endorsement of the Stop the Wait Act (H.R. 883 and S. 320), which seeks to end the 5-month waiting period for individuals to receive Social Security Disability Insurance (SSDI) benefits, as well as allow those who are uninsured or unable to afford insurance during the 29-month waiting period for Medicare to receive coverage.
Tips for Success: Long COVID and Disability Insurance Claims
February 8, 2023
If you are unable to work due to a disability, you may be eligible for short-term (STD) and long-term disability (LTD) insurance benefits. The application process for disability benefits can be complicated and time-consuming, and it can be difficult to know what to expect. In this article, we will discuss the steps you can take to increase your chances of having your claim for disability benefits approved.
Patient-Led Researchers Publish Comprehensive Study on Long COVID
January 14, 2023
On January 13, 2023, a major study authored by Hannah E. Davis, Lisa McCorkell, Julia Moore Vogel, and Eric J. Topol was published in Nature Reviews Microbiology. This study, titled “Long COVID: major findings, mechanisms and recommendations,” provides a comprehensive overview of long COVID and the current understanding of the associated pathophysiology.
