Pandemic Patients a 501(c)(3) non-profit patient advocacy organization with one mission: To relieve the harm caused by COVID-19 and Post-COVID Conditions. We are working to ensure that those affected by COVID-19 receive the support and services they need to live their best lives. 

Since January 21, 2020, there have been 97,895,860 confirmed cases of COVID-19 in the United States.

A global analysis published in the Journal of Infectious Diseases on April 26, 2022, estimates that 49 percent of patients will continue to experience COVID-19 symptoms 120 days after infection. These persistent symptoms, referred to as “long COVID,” include fatigue, difficulty breathing, pain, cognitive dysfunction, and many others.

Current research suggests that the risk of developing persistent symptoms increases each time a person is infected with COVID-19.

Long COVID symptoms can be severe and disabling.

The Brookings Institution published a report on August 24, 2022, which estimated that 16 million Americans are currently experiencing long COVID. This report also estimated that between 2 to 4 million Americans are experiencing symptoms so severe that they cannot work. The lost wages of 4 million missing American workers exceeds $200 billion per year.

On July 16, 2022, a Harvard economist estimated that the cost of medical care and lost quality of life associated with long COVID exceeds $500 billion per year.

Pandemic Patients is here to help.

We strive to improve the lives of COVID-19 patients and survivors by raising awareness about COVID-19, providing individual assistance to patients, advocating on their behalf at the state and national level, and publishing educational resources for patients, policymakers, and the public.

Review our COVID-19 Resources and our Policy Priorities to learn more.

If you have been affected by COVID-19 and you need assistance, or if you want to get more involved in our work, contact us. 

Pandemic Patients Submits Letter of Support for California’s Proposed Workplace Safety Standards

On July 29, 2022, the California Occupational Safety and Health Standards Board (Cal/OSHA) proposed to implement new workplace safety standards for large employers operating in the state. Referred to as General Industry Safety Orders, the proposed standards would require employers to play a more active role in reducing the spread of COVID-19 in the workplace.

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J.B. Asked: Can I Appeal a Disability Insurer’s Medical Review?

“I have long COVID and I recently filed a claim for disability insurance benefits through my workplace disability policy. The insurance company relied on a clinician’s review of my medical records to deny my claim. The clinician is employed by the insurance company, they never examined me in-person, and they do not specialize in a field of medicine relevant to my long COVID symptoms. Can I appeal the insurance company’s decision?”

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Pandemic Patients Launches COVID-19 Advocacy Center

The COVID-19 Advocacy Center provides guidance for individuals who want to take an active role in pushing for change among the state legislatures and Congress. It also includes information about current and upcoming advocacy opportunities across the country, with step-by-step instructions on how to participate.

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