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Pandemic Patients is Going to Washington

We are hosting a briefing about long COVID on Capitol Hill and we need your support!

In observance of International Long COVID Awareness Day, we are pleased to announce we are hosting a Congressional Briefing in Washington, D.C. on May 22, 2023. The event is in partnership with the COVID-19 Health and Safety Taskforce (CHeST) and represents a unique opportunity to raise awareness about long COVID among members of Congress and their staff.

This opportunity provides two meaningful ways for you to support us: 

1. Help us get to Washington!

Alongside this announcement, we are launching a fundraising campaign to support our Congressional Briefing. The fundraiser will help us cover travel expenses for staff and volunteers, costs for printing handouts and materials, and event management fees. We want to make the most of this opportunity and we need your help to ensure this event is a success.

Please consider donating to our fundraising campaign to help us raise awareness about long COVID on Capitol Hill. As a 501(c)3 nonprofit organization, your contribution is tax-deductible. Every dollar raised will make a big difference in the impact this event will have.

2. Share Your Story with Congress!

If you have been personally affected by long COVID, we invite you to complete this short survey. Responses to this survey will be shared directly with members of Congress and their staff during the event. Add your voice to let Congress know long COVID needs attention.

FDA Schedules Public Meeting on Long COVID

To better understand and address the impacts of long COVID, the U.S. Food and Drug Administration (FDA) is hosting a public meeting on April 25, 2023 to hear directly from patients and patient representatives.

CHeST Endorses the Stop the Wait Act

CHeST is proud to announce its endorsement of the Stop the Wait Act (H.R. 883 and S. 320), which seeks to end the 5-month waiting period for individuals to receive Social Security Disability Insurance (SSDI) benefits, as well as allow those who are uninsured or unable to afford insurance during the 29-month waiting period for Medicare to receive coverage.