Our Vision for 2024
November 17, 2023
Pandemic Patients achieved great progress in 2023 and looks ahead to 2024. Continue reading to learn about our recent progress and our plans for the coming year.
Pandemic Patients Launches Campaign to Deliver Critical Support to Disabled Long COVID Patients.
November 13, 2023
With this campaign, Pandemic Patients will expand the availability of disability support services for people with long COVID.
CHeST Endorses the SSI Savings Penalty Elimination Act
September 14, 2023
Pandemic Patients and the COVID-19 Health and Safety Taskforce (CHeST) endorsed bipartisan legislation to modernize the SSI program.
Pandemic Patients Calls on Congress to Increase Investment in the 988 Suicide & Crisis Lifeline
July 20, 2023
Pandemic Patients joined a letter with mental health stakeholder groups to ask Congressional appropriators for continued investment in the 988 Suicide & Crisis Lifeline.
Pandemic Patients Submits Comment to the FDA to Support Patient-Focused Drug Development for Long COVID
June 26, 2023
On June 26, 2023, Pandemic Patients submitted a comment to the FDA supporting the agency’s efforts to promote patient-focused drug development for long COVID.
RECOVER Study Promotes Damaging Framework for Long COVID
June 7, 2023
A study funded by the NIH RECOVER Initiative advanced a damaging framework for diagnosing long COVID. Pandemic Patients calls for the study to be retracted.
Pandemic Patients Submits Feedback on the Household Pulse Survey
May 30, 2023
On May 30, 2023, Pandemic Patients submitted feedback to the U.S. Census Bureau on the agency’s proposed updates to the Household Pulse Survey.
New Survey: The Impact of COVID Reinfections
May 14, 2023
The Patient-Led Research Collaborative is working to better understand how being reinfected by COVID-19 may increase the risk of developing long COVID. You can participate in their research by completing their survey.
NASEM Convenes Stakeholders to Refine Definition of Long COVID
May 9, 2023
A committee from the National Academies of Sciences, Engineering, and Medicine is soliciting feedback from the public on the U.S. Government’s working definition of Long COVID. Comments can be submitted through June 12, 2023.
CHeST Endorses the CARE for Long COVID Act
March 16, 2023
CHeST is proud to stand in solidarity with the long COVID patient community by endorsing the CARE for Long COVID Act.
