With this campaign, Pandemic Patients will expand the availability of disability support services for people with long COVID.
Pandemic Patients and the COVID-19 Health and Safety Taskforce (CHeST) endorsed bipartisan legislation to modernize the SSI program.
Pandemic Patients joined a letter with mental health stakeholder groups to ask Congressional appropriators for continued investment in the 988 Suicide & Crisis Lifeline.
Pandemic Patients Submits Comment to the FDA to Support Patient-Focused Drug Development for Long COVID
On June 26, 2023, Pandemic Patients submitted a comment to the FDA supporting the agency’s efforts to promote patient-focused drug development for long COVID.
A study funded by the NIH RECOVER Initiative advanced a damaging framework for diagnosing long COVID. Pandemic Patients calls for the study to be retracted.
On May 30, 2023, Pandemic Patients submitted feedback to the U.S. Census Bureau on the agency’s proposed updates to the Household Pulse Survey.
A committee from the National Academies of Sciences, Engineering, and Medicine is soliciting feedback from the public on the U.S. Government’s working definition of Long COVID. Comments can be submitted through June 12, 2023.