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Dec. 2, 2021 – Pandemic Patients Joins Long COVID Alliance Letter Supporting Research on Long COVID

On December 2, 2021, the Long COVID Alliance, joined by Pandemic Patients and a community of patient advocates, delivered a letter to the Senate Health, Education, Labor & Pensions (HELP) Committee. The Long COVID Alliance submitted this letter to the committee in an effort to persuade the committee to more meaningfully consider the impact of long COVID as a part of the country’s national response to the COVID-19 pandemic. Specifically, this letter contained the following recommendations for the committee:

  • Enhance investment in long COVID treatments to provide options for patients;
  • Expand efforts to educate the medical community about long COVID to improve outcomes for patients; and
  • Convene a commission on long COVID to improve collaboration with the patient community.

Additionally, the letter voiced support for H.R. 2754, the COVID-19 Long Haulers Act, which would authorize the creation of a patient registry to collect data on long COVID patients. This legislation would also require the U.S. Centers for Disease Control and Prevention to disseminate data on long COVID, including symptoms and treatment options.

Click here to review the letter.

Sen. Kaine Introduces the CARE for Long COVID Act

On March 2, 2022, Sens. Kaine, Duckworth, and Markey introduced S. 3726, the Comprehensive Access to Resources and Education (CARE) for Long COVID Act. If enacted, this legislation will invigorate the federal government’s response to the growing needs of patients living with long COVID.

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