PANDEMIC PULSE

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Pandemic Patients Joins Long COVID Alliance Letter Supporting Research on Long COVID

On December 2, 2021, the Long COVID Alliance, joined by Pandemic Patients and a community of patient advocates, delivered a letter to the Senate Health, Education, Labor & Pensions (HELP) Committee. The Long COVID Alliance submitted this letter to the committee in an effort to persuade the committee to more meaningfully consider the impact of long COVID as a part of the country’s national response to the COVID-19 pandemic. Specifically, this letter contained the following recommendations for the committee:

  • Enhance investment in long COVID treatments to provide options for patients;
  • Expand efforts to educate the medical community about long COVID to improve outcomes for patients; and
  • Convene a commission on long COVID to improve collaboration with the patient community.

Additionally, the letter voiced support for H.R. 2754, the COVID-19 Long Haulers Act, which would authorize the creation of a patient registry to collect data on long COVID patients. This legislation would also require the U.S. Centers for Disease Control and Prevention to disseminate data on long COVID, including symptoms and treatment options.

Click here to review the letter.

Pandemic Patients Submits Letter of Support for California’s Proposed Workplace Safety Standards

On July 29, 2022, the California Occupational Safety and Health Standards Board (Cal/OSHA) proposed to implement new workplace safety standards for large employers operating in the state. Referred to as General Industry Safety Orders, the proposed standards would require employers to play a more active role in reducing the spread of COVID-19 in the workplace.

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J.B. Asked: Can I Appeal a Disability Insurer’s Medical Review?

“I have long COVID and I recently filed a claim for disability insurance benefits through my workplace disability policy. The insurance company relied on a clinician’s review of my medical records to deny my claim. The clinician is employed by the insurance company, they never examined me in-person, and they do not specialize in a field of medicine relevant to my long COVID symptoms. Can I appeal the insurance company’s decision?”

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