On June 26, 2023, Pandemic Patients submitted a comment to the FDA supporting the agency’s efforts to promote patient-focused drug development for long COVID.
A study funded by the NIH RECOVER Initiative advanced a damaging framework for diagnosing long COVID. Pandemic Patients calls for the study to be retracted.
The Patient-Led Research Collaborative is working to better understand how being reinfected by COVID-19 may increase the risk of developing long COVID. You can participate in their research by completing their survey.
To better understand and address the impacts of long COVID, the U.S. Food and Drug Administration (FDA) is hosting a public meeting on April 25, 2023 to hear directly from patients and patient representatives.
On Dec. 29, 2022, President Biden signed the Consolidated Appropriations Act of 2023 into law, funding the federal government through September 2023. The final budget, spanning 1653 pages, enacts many changes to public policy, some of which are related to the coronavirus pandemic.
On January 13, 2023, a major study authored by Hannah E. Davis, Lisa McCorkell, Julia Moore Vogel, and Eric J. Topol was published in Nature Reviews Microbiology. This study, titled “Long COVID: major findings, mechanisms and recommendations,” provides a comprehensive overview of long COVID and the current understanding of the associated pathophysiology.
On December 7, 2022, Pandemic Patients joined with COVID Survivors for Change, Long COVID Families, and Survivor Corps to request funding for long COVID research in the federal defense budget for FY 2023.
On December 2, 2021, the Long COVID Alliance, joined by Pandemic Patients and a community of patient advocates, delivered a letter to the Senate Health, Education, Labor & Pensions (HELP) Committee. The Long COVID Alliance submitted this letter to the committee in an effort to persuade the committee to more meaningfully consider the impact of long COVID as a part of the country’s national response to the COVID-19 pandemic.
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