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Pandemic Patients Launches COVID-19 Advocacy Center

Patients and survivors of COVID-19 are mobilizing around the country to advocate for changes to policy to support their needs. To amplify these efforts, Pandemic Patients has launched the COVID-19 Advocacy Center, which provides resources for individuals who want to take an active role in pushing for change among the state legislatures and Congress. The COVID-19 Advocacy Center highlights current and upcoming advocacy opportunities across the country, with step-by-step instructions on how to participate. Additionally, the COVID-19 Advocacy Center features an Engagement Toolkit that provides guidance for individuals who are getting involved for the first time. With these resources, patients and survivors of COVID-19 can learn how to tell their personal story more effectively, how to identify opportunities to get involved with the legislative process, how to persuade policymakers to take action, and more! You can also access the Engagement Toolkit below.

Engagement Toolkit:

The COVID-19 Advocacy Center is updated regularly, so be sure to watch for emails from us when new opportunities are posted. You can subscribe to our mailing list here.

Pandemic Patients Submits Testimony in Support of CA AB 2098

On June 20, 2022, Pandemic Patients submitted testimony to the California Senate Standing Committee on Business, Professions, and Economic Development in support of California Assembly Bill 2098 (AB 2098). If enacted, AB 2098 would include the dissemination of misinformation or disinformation about COVID-19 in the definition of unprofessional conduct. This would include inaccurate information about “the nature and risks of COVID-19, its prevention and treatment, and the development, safety, and efficacy of COVID-19 vaccines.” By including this type of behavior in the definition of unprofessional conduct, California will authorize the Medical Board of California and the Osteopathic Medical Board of California to discipline physicians and surgeons who spread disinformation or misinformation about COVID-19 to their patients.

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Pandemic Patients Joins Long COVID Alliance Letter Supporting Research on Long COVID

On December 2, 2021, the Long COVID Alliance, joined by Pandemic Patients and a community of patient advocates, delivered a letter to the Senate Health, Education, Labor & Pensions (HELP) Committee. The Long COVID Alliance submitted this letter to the committee in an effort to persuade the committee to more meaningfully consider the impact of long COVID as a part of the country’s national response to the COVID-19 pandemic.

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