PANDEMIC PULSE

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Pandemic Patients Issues Letter of Support for Sen. Kaine's CARE for Long COVID Act

On March 14, 2022, Pandemic Patients issued a letter of support for Sen. Kaine’s CARE for Long COVID Act, which was introduced on March 2, 2022. We are incredibly grateful for Sen. Kaine’s introduction of this legislation and the many ways that it would provide support for patients with long COVID. Specifically, the CARE for Long COVID Act would:

  • Authorize $30,000,000 of funding for FY23 through the Patient-Centered Outcomes Research Trust Fund to improve treatment and outcomes for patients with long COVID, including the creation of a voluntary patient registry;
  • Authorize $15,000,000 of funding for FY23 through the U.S. Department of Health and Human Services to conduct or support research related to the US health care system’s response to long COVID;
  • Authorize $30,000,000 for each of FY23, FY24, and FY25 through the U.S. Centers for Disease Control and Prevention to develop and disseminate information to the public regarding long COVID and associated conditions. This funding will also support a health care provider education program that will advance the proficiency of health care providers for treating patients with long COVID and associated conditions;
  • Authorize $30,000,000 for each of FY23, FY24, and FY25 through the U.S. Department of Health and Human Services to raise awareness about the impact long COVID and associated conditions may have on rights associated with employment, disability status, and education under state and federal law;
  • Authorize $3,000,000 for FY22 through the U.S. Department of Health and Human Services to collect data through the Medicaid program and the Children’s Health Insurance Program on items and services that are furnished to individuals with long COVID; and
  • Authorize $50,000,000 for each of FY23, FY24, FY25, FY26, and FY27 through the U.S. Department of Health and Human Services to award grants and contracts to organizations that will increase the availability of critical social supports for patients with long COVID, including legal assistance.

Pandemic Patients will continue to advocate for this legislation as it advances through Congress. Similarly, we urge Americans who have been affected by COVID-19 to contact their senators to encourage them to support the CARE for Long COVID Act.

Interested in learning more about this legislation? You can read our full letter of support here.

Pandemic Patients Submits Letter of Support for California’s Proposed Workplace Safety Standards

On July 29, 2022, the California Occupational Safety and Health Standards Board (Cal/OSHA) proposed to implement new workplace safety standards for large employers operating in the state. Referred to as General Industry Safety Orders, the proposed standards would require employers to play a more active role in reducing the spread of COVID-19 in the workplace.

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J.B. Asked: Can I Appeal a Disability Insurer’s Medical Review?

“I have long COVID and I recently filed a claim for disability insurance benefits through my workplace disability policy. The insurance company relied on a clinician’s review of my medical records to deny my claim. The clinician is employed by the insurance company, they never examined me in-person, and they do not specialize in a field of medicine relevant to my long COVID symptoms. Can I appeal the insurance company’s decision?”

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