In January 2020, the Secretary of the U.S. Department of Health and Human Services declared a public health emergency in response to the coronavirus pandemic, which allowed for many temporary changes to health policy in the United States. The public health emergency has been extended several times, but the Biden Administration recently announced that the public health emergency will end on May 11, 2023.
On December 15, 2023, Pandemic Patients submitted a letter to President Biden urging him to include a coordinated long COVID response strategy in his upcoming FY 2025 Budget Request.
Pandemic Patients achieved great progress in 2023 and looks ahead to 2024. Continue reading to learn about our recent progress and our plans for the coming year.
Pandemic Patients and the COVID-19 Health and Safety Taskforce (CHeST) endorsed bipartisan legislation to modernize the SSI program.
Pandemic Patients joined a letter with mental health stakeholder groups to ask Congressional appropriators for continued investment in the 988 Suicide & Crisis Lifeline.
On June 26, 2023, Pandemic Patients submitted a comment to the FDA supporting the agency’s efforts to promote patient-focused drug development for long COVID.
A study funded by the NIH RECOVER Initiative advanced a damaging framework for diagnosing long COVID. Pandemic Patients calls for the study to be retracted.
On May 30, 2023, Pandemic Patients submitted feedback to the U.S. Census Bureau on the agency’s proposed updates to the Household Pulse Survey.
The Patient-Led Research Collaborative is working to better understand how being reinfected by COVID-19 may increase the risk of developing long COVID. You can participate in their research by completing their survey.
A committee from the National Academies of Sciences, Engineering, and Medicine is soliciting feedback from the public on the U.S. Government’s working definition of Long COVID. Comments can be submitted through June 12, 2023.
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