Our mission is to relieve the harm caused by COVID-19 and Post-COVID Conditions.
We work to ensure that people affected by COVID-19 receive the support and services they need to live their best lives.
Programs and Services
Pandemic Patients develops and publishes educational resources about COVID-19 and Post-COVID conditions. These resources are designed to raise awareness about COVID-19, educate patients and the public about COVID-19, help reduce the risk of infectious disease transmission, and connect patients and health care professionals with up-to-date information about COVID-19.
The COVID-19 Advocacy Center includes information about advocacy opportunities across the country with instructions on how to get involved. This page also features an Engagement Toolkit with guidance on how to be an effective advocate.
The Pandemic Legal Assistance Network (PLAN) is a national network of attorneys who have volunteered to provide pro bono assistance to individuals who have been affected by COVID-19. If you have a legal problem related to COVID-19, contact us for assistance.
The COVID-19 Health and Safety Taskforce (CHeST) is a coalition of patient advocacy organizations that advocates for policies to protect Americans against COVID-19, long COVID, and associated conditions.
Pandemic Patients and the COVID-19 Health and Safety Taskforce (CHeST) endorsed bipartisan legislation to modernize the SSI program.
Pandemic Patients joined a letter with mental health stakeholder groups to ask Congressional appropriators for continued investment in the 988 Suicide & Crisis Lifeline.
Pandemic Patients Submits Comment to the FDA to Support Patient-Focused Drug Development for Long COVID
On June 26, 2023, Pandemic Patients submitted a comment to the FDA supporting the agency’s efforts to promote patient-focused drug development for long COVID.
A study funded by the NIH RECOVER Initiative advanced a damaging framework for diagnosing long COVID. Pandemic Patients calls for the study to be retracted.
On May 30, 2023, Pandemic Patients submitted feedback to the U.S. Census Bureau on the agency’s proposed updates to the Household Pulse Survey.
The Patient-Led Research Collaborative is working to better understand how being reinfected by COVID-19 may increase the risk of developing long COVID. You can participate in their research by completing their survey.