Nov. 17, 2021 – U.S. House Introduces Legislation to Support Long COVID Patients

On November 17, 2021, US. Reps. DeGette (D-CO) and Upton (R-MI) introduced “21st Century Cures 2.0,” in the House of Representatives. This legislation follows-up on the original 21st Century Act with policy proposals that address public health, the needs of patients and caregivers, and regulations issued by the U.S. Food and Drug Administration (FDA) and the Centers for Medicare and Medicaid Services (CMS). Importantly, the legislation contains several provisions that support patients with long COVID, including the COVID-19 Long Haulers Act championed by Reps. Beyer (D-VA) and Bergman (R-MI).

Specifically, 21st Century Cures 2.0 contains the following section: 

Sec. 101. Further Understanding the Implications of Long COVID:

Directs the Secretary of Health and Human Services (HHS) to conduct a national survey of long COVID patients to collect data regarding sources of health coverage, long-term care coverage, and disability coverage.

Directs the Secretary of HHS to convene national meetings to develop a long COVID learning collaborative.

Establishes research grants administered by the National Institutes of Health (NIH) to research the long-term effects of COVID-19 in children.

Directs the National Academy of Medicine to study the disparities in long-COVID.

Directs the Secretary of HHS to develop and distribute culturally-competent information to the public regarding long COVID and up-to-date treatment guidelines for health care providers.

These provisions fully align with the mission and values of Pandemic Patients. Pandemic Patients celebrates the introduction of this critical legislation and anticipates its enactment.

Sen. Kaine Introduces the CARE for Long COVID Act

On March 2, 2022, Sens. Kaine, Duckworth, and Markey introduced S. 3726, the Comprehensive Access to Resources and Education (CARE) for Long COVID Act. If enacted, this legislation will invigorate the federal government’s response to the growing needs of patients living with long COVID.

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